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#28: Letter to Me

Today I’m still reveling in hearing the words “I love you, Mommy” from E for the first time. I’ve been riding that high for a week now....

#27: I Love You

There are good days and bad days as a parent, and that holds true for special needs parents as well. But sometimes a day that starts out...

#26: Stronger

“E is just weaker in certain areas at this point, or maybe I should say not as fully developed.” My back stiffens. I am in a meeting at...

#25: Activate

When I was a child there was a television cartoon called “Super Friends” that included a brother and sister team called the “Wonder...

#24: First Day

The first day of school means excitement, anticipation, concern, and anxiety … and that’s just for the parents. Today we will find out...

#23: Rest

Rest is something I’ve struggled with for a long time. I don’t sit still well. I don’t enjoy watching movies because two hours is too...

#22: 9/11

On the morning of September 11, 2001, I was at work in my office on the 5th floor of the Department of Justice, in downtown Washington,...

#21: Sounding Board

If only I’d had a sounding board. Another mom who knew the signs. Someone who could have helped me spot that E’s lack of words, food...

#20: Friends

In a few short months E will start kindergarten. Like every parent whose first child is about to start school, I’m struggling with fears...

#19: Genius

Last night before bed E came clomping into the kitchen in his pajamas, wearing Daddy’s sneakers. I grabbed my phone and snapped a picture...

#18: Love Without Words

Last night at bedtime, after we read a story and said our prayers, I spent a few extra minutes sitting on E’s bed with him. Like he does...

#17: Rescue Party

We moved here to north Texas about 18 months ago, a matter of weeks before our daughter was born. Those first few months were really hard...

#16: Mission

As a little girl I dreamt about being an actress. Actresses always seemed so confident, so fearless and strong. For a shy child like me,...

#15: One Step

It snowed last night, a rare occurrence here in north Texas. We awoke to the view of a pristine white blanket covering our neighborhood,...

#14: Identity

Some days I wake up and feel like I can conquer the day. Today is not one of those days. Last night my anxiety-ridden mind would not shut...

#13: New Normal

The holiday season is upon us. As we continue our quest to find our new normal, the rhythm of life moves on. Holiday gifts to buy, food...

#12: The Letter

It’s November 19th. Our sixth wedding anniversary. It snuck up on me this year. Thanksgiving is in a few days, too. Normally by this...

#11: Perspective

It is 5am and I’m driving through dense fog on my way to the airport. The fog is fitting. It’s a perfect picture of how my head feels...

#10: Transitions

E is in boot camp. That’s what it feels like anyway. For nearly three hours yesterday he endured a thorough evaluation by a speech...

#9: The Lullaby

He’s been feeding off my stress these last few weeks. E has always been so sensitive to my moods, even as a baby. Today, his actions are...

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